A survey on accessibility guidelines for users with autism: a broad understanding of the relevance and completeness
Resumo
The heterogeneity of Autism Spectrum Disorder (ASD) requires providing everyday activities and interventions adapted according to the characteristics of each individual. Digital Solutions (software, apps, websites, etc.) can support this adaptation to favor the development and expand the abilities of these specific users. However, it is necessary to ensure the quality of these resources. From this perspective, accessibility recommendations for users with autism are available to guide developers and evaluation teams on the development of suitable digital solutions. This paper describes the results of an online exploratory survey about the relevance, suitability, and understandability of accessibility guidelines for ASD. The survey targeted different profiles, including individuals with ASD; parents or legal guardians; practitioners who work with this population; ergonomists and software developers; and researchers who are interested in this subject. The paper presents and discusses the result of 440 valid answers from more than five countries.
Palavras-chave:
Autism Spectrum Disorder, Accessibility, cognitive accessibility, exploratory survey
Referências
American Psychiatric Association. 2013. Diagnostic and statistical manual of mental disorders (DSM-5®). American Psychiatric Pub.
Marília Cecília Calani Baranauskas, Clarisse Sieckenius de Souza, and Roberto Pereira. 2015. GranDIHC-BR - Grand Research Challenges for Human-Computer Interaction in Brazil. Human-Computer Interaction Special Committee (CEIHC) of the Brazilian Computer Society (SBC).
Catarina Neves, Cláudia Augusto & Ana Lúcia Terra. (2020). Questionários online: análise comparativa de ferramentas para a criação e aplicação de e-surveys. AtoZ: novas práticas em informação e conhecimento, 9(2), 69--78.
Christopher Frauenberger, Julia Makhaeva, and Katta Spiel. 2017. "Blending Methods: Developing Participatory Design Sessions for Autistic Children." In Proceedings of the 2017 Conference on Interaction Design and Children, 39--49. Stanford, California, USA. ACM.
Renata Cascaes, Kalill Lameira, Ricardo Sarmanho, Kelly Pinheiro, Marcelle Pereira Mota, Antônio Pereira, and Nelson Cruz Sampaio Neto. 2018. Adaptation and Automation of a Cancellation Test for Evaluation of Exploratory Visual Behavior. In Proceedings of the 17th Brazilian Symposium on Human Factors in Computing Systems (IHC 2018). Association for Computing Machinery, New York, NY, USA, Article 5, 1--9.
Karina da Silva Castelo Branco, Valéria Maria da S. Pinheiro, Adriana Lopes Damian, and Anna Beatriz Marques. 2020. Investigating the first user experience and accessibility of educational applications for autistic children. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 25, 1--10.
Rafael Farias Cordeiro et al. 2018. The Brazilian Challenge to Accessibility and Digital Inclusion for People with Autistic Spectrum Disorders. In 17th Brazilian Symposium on Human Factors in Computing Systems (IHC 2018), October 22--26, 2018, Belém, Brazil. ACM, New York, NY, USA..
Firah (2018). Témoignages des parents, professionnels et enfants autistes sur les usages numériques: Rapport inter-Pays. Projet Autisme & Nouvelles Technologies, Fondation Internationale de la Recherche Appliquée sur le Handicap (FIRAH). Disponível em: [link].
Firah (2018). Trucs et astuces: issus des témoignages des parents, professionnels et enfants sur les usages numériques. Projet Autisme & Nouvelles Technologies, Fondation Internationale de la Recherche Appliqueé sur le Handicap (FIRAH). Disponível em: [link].
Elizabeth Sucupira Furtado, Daniel Chagas, Ig Ibert Bittencourt and Agebson Façanha. 2015. Accessibility and Digital Inclusion. In: Baranauskas de Souza and Pereira (orgs.). I GranDIHC-BR - Grand Research Challenges for Human-Computer Interaction in Brazil. In HumanComputer Interaction Special Committee (CEIHC) of the Brazilian Computer Society (SBC). pp.20--23.
Cleusa de Fátima Granatto, Marynea A. P. Pallaro, and Sílvia Amélia Bim. 2016. Digital Accessibility: Systematic Review of Papers from the Brazilian Symposium on Human Factors in Computer Systems. In Proceedings of the 15th Brazilian Symposium on Human Factors in Computing Systems.
Dayanne Gomes, Nathasha Pinto, Aurea Melo, Ivana Maia, Anselmo Paiva, Raimundo Barreto, Davi Viana, and Luis Rivero. 2021. Developing a Set of Design Patterns Specific for the Design of User Interfaces for Autistic Users. In Proceedings of the XX Brazilian Symposium on Human Factors in Computing Systems (IHC '21). Association for Computing Machinery, New York, NY, USA, Article 16, 1--7.
Katherine Valencia, Cristian Rusu, Daniela Quiñones and Erick Jamet. 2019. The impact of technology on people with autism spectrum disorder: a systematic literature review. Sensors, 19(20), 4485.
Maëla Trémaud, Yuska Paola Costa Aguiar, Jean-Baptiste Pavani, Bruno Gepner and Carole Tardif. (2021). What do digital tools add to classical tools for sociocommunicative and adaptive skills in children with Autism Spectrum Disorder?. LAnnee psychologique, 121(4), 361--392.
Joseph Maurice Christian Bastien, and Dominique L. Scapin. (1993). Critères ergonomiques pour l'évaluation d'interfaces utilisateurs. Rapport technique INRIA, 156.
Ouriel Grynszpan, Patrice L (Tamar) Weiss, Fernando Perez-Diaz & Eynat Gal. 2014. Innovative technology-based interventions for autism spectrum disorders : A meta-analysis. Autism, 18(4), 346 361.
Bertram O. Ploog, Alexa Scharf, DeShawn Nelson, and Patricia J. Brooks. 2013. Use of computer-assisted technologies (CAT) to enhance social, communicative, and language development in children with autism spectrum disorders. Journal of autism and developmental disorders, 43(2), 301--322
Yuska Paola Costa Aguiar, Edith Galy, Anaïs Godde, Maëla Trémaud and Carole Tardif. (2022). AutismGuide: a usability guidelines to design software solutions for users with autism spectrum disorder. Behaviour & Information Technology, 41(6), 1132--1150.
Talita Pagani and Ednaldo Pizzolato. 2018. GAIA: uma proposta de um guia de recomendações de acessibilidade de interfaces Web com foco em aspectos do Autismo. Revista Brasileira de Informática na Educação - RBIE.
Talita Pagani. 2020. GAIA: um guia de recomendações de design digital inclusivo para pessoas com autismo. Editora Appris Ltda. 1a Edição. Curitiba, PR, Brasil.
Talita Cristina Pagani Britto Pichiliani and Ednaldo Brigante Pizzolato. 2019. A survey on the awareness of brazilian web development community about cognitive accessibility. In Proceedings of the 18th Brazilian Symposium on Human Factors in Computing Systems (IHC '19). Association for Computing Machinery, New York, NY, USA, Article 8, 1--11.
Adhonay Júnior Silva, Tiza Verciano Romeiro, and Cristiane Neri Nobre. 2020. Evaluation of digital games for autistic children using heuristics and observation tests. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 15, 1--10.
Áurea Hiléia da Silva Melo, Luis Rivero, Jonathas Silva dos Santos, and Raimundo da Silva Barreto. 2020. PersonAut: a personas model for people with autism spectrum disorder. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 54, 1--6.
Áurea Hiléia da Silva Melo, Luis Rivero, Jonathas Silva dos Santos, and Raimundo da Silva Barreto. 2020. EmpathyAut: an empathy map for people with autism. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 45, 1--6.
Marília Cecília Calani Baranauskas, Clarisse Sieckenius de Souza, and Roberto Pereira. 2015. GranDIHC-BR - Grand Research Challenges for Human-Computer Interaction in Brazil. Human-Computer Interaction Special Committee (CEIHC) of the Brazilian Computer Society (SBC).
Catarina Neves, Cláudia Augusto & Ana Lúcia Terra. (2020). Questionários online: análise comparativa de ferramentas para a criação e aplicação de e-surveys. AtoZ: novas práticas em informação e conhecimento, 9(2), 69--78.
Christopher Frauenberger, Julia Makhaeva, and Katta Spiel. 2017. "Blending Methods: Developing Participatory Design Sessions for Autistic Children." In Proceedings of the 2017 Conference on Interaction Design and Children, 39--49. Stanford, California, USA. ACM.
Renata Cascaes, Kalill Lameira, Ricardo Sarmanho, Kelly Pinheiro, Marcelle Pereira Mota, Antônio Pereira, and Nelson Cruz Sampaio Neto. 2018. Adaptation and Automation of a Cancellation Test for Evaluation of Exploratory Visual Behavior. In Proceedings of the 17th Brazilian Symposium on Human Factors in Computing Systems (IHC 2018). Association for Computing Machinery, New York, NY, USA, Article 5, 1--9.
Karina da Silva Castelo Branco, Valéria Maria da S. Pinheiro, Adriana Lopes Damian, and Anna Beatriz Marques. 2020. Investigating the first user experience and accessibility of educational applications for autistic children. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 25, 1--10.
Rafael Farias Cordeiro et al. 2018. The Brazilian Challenge to Accessibility and Digital Inclusion for People with Autistic Spectrum Disorders. In 17th Brazilian Symposium on Human Factors in Computing Systems (IHC 2018), October 22--26, 2018, Belém, Brazil. ACM, New York, NY, USA..
Firah (2018). Témoignages des parents, professionnels et enfants autistes sur les usages numériques: Rapport inter-Pays. Projet Autisme & Nouvelles Technologies, Fondation Internationale de la Recherche Appliquée sur le Handicap (FIRAH). Disponível em: [link].
Firah (2018). Trucs et astuces: issus des témoignages des parents, professionnels et enfants sur les usages numériques. Projet Autisme & Nouvelles Technologies, Fondation Internationale de la Recherche Appliqueé sur le Handicap (FIRAH). Disponível em: [link].
Elizabeth Sucupira Furtado, Daniel Chagas, Ig Ibert Bittencourt and Agebson Façanha. 2015. Accessibility and Digital Inclusion. In: Baranauskas de Souza and Pereira (orgs.). I GranDIHC-BR - Grand Research Challenges for Human-Computer Interaction in Brazil. In HumanComputer Interaction Special Committee (CEIHC) of the Brazilian Computer Society (SBC). pp.20--23.
Cleusa de Fátima Granatto, Marynea A. P. Pallaro, and Sílvia Amélia Bim. 2016. Digital Accessibility: Systematic Review of Papers from the Brazilian Symposium on Human Factors in Computer Systems. In Proceedings of the 15th Brazilian Symposium on Human Factors in Computing Systems.
Dayanne Gomes, Nathasha Pinto, Aurea Melo, Ivana Maia, Anselmo Paiva, Raimundo Barreto, Davi Viana, and Luis Rivero. 2021. Developing a Set of Design Patterns Specific for the Design of User Interfaces for Autistic Users. In Proceedings of the XX Brazilian Symposium on Human Factors in Computing Systems (IHC '21). Association for Computing Machinery, New York, NY, USA, Article 16, 1--7.
Katherine Valencia, Cristian Rusu, Daniela Quiñones and Erick Jamet. 2019. The impact of technology on people with autism spectrum disorder: a systematic literature review. Sensors, 19(20), 4485.
Maëla Trémaud, Yuska Paola Costa Aguiar, Jean-Baptiste Pavani, Bruno Gepner and Carole Tardif. (2021). What do digital tools add to classical tools for sociocommunicative and adaptive skills in children with Autism Spectrum Disorder?. LAnnee psychologique, 121(4), 361--392.
Joseph Maurice Christian Bastien, and Dominique L. Scapin. (1993). Critères ergonomiques pour l'évaluation d'interfaces utilisateurs. Rapport technique INRIA, 156.
Ouriel Grynszpan, Patrice L (Tamar) Weiss, Fernando Perez-Diaz & Eynat Gal. 2014. Innovative technology-based interventions for autism spectrum disorders : A meta-analysis. Autism, 18(4), 346 361.
Bertram O. Ploog, Alexa Scharf, DeShawn Nelson, and Patricia J. Brooks. 2013. Use of computer-assisted technologies (CAT) to enhance social, communicative, and language development in children with autism spectrum disorders. Journal of autism and developmental disorders, 43(2), 301--322
Yuska Paola Costa Aguiar, Edith Galy, Anaïs Godde, Maëla Trémaud and Carole Tardif. (2022). AutismGuide: a usability guidelines to design software solutions for users with autism spectrum disorder. Behaviour & Information Technology, 41(6), 1132--1150.
Talita Pagani and Ednaldo Pizzolato. 2018. GAIA: uma proposta de um guia de recomendações de acessibilidade de interfaces Web com foco em aspectos do Autismo. Revista Brasileira de Informática na Educação - RBIE.
Talita Pagani. 2020. GAIA: um guia de recomendações de design digital inclusivo para pessoas com autismo. Editora Appris Ltda. 1a Edição. Curitiba, PR, Brasil.
Talita Cristina Pagani Britto Pichiliani and Ednaldo Brigante Pizzolato. 2019. A survey on the awareness of brazilian web development community about cognitive accessibility. In Proceedings of the 18th Brazilian Symposium on Human Factors in Computing Systems (IHC '19). Association for Computing Machinery, New York, NY, USA, Article 8, 1--11.
Adhonay Júnior Silva, Tiza Verciano Romeiro, and Cristiane Neri Nobre. 2020. Evaluation of digital games for autistic children using heuristics and observation tests. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 15, 1--10.
Áurea Hiléia da Silva Melo, Luis Rivero, Jonathas Silva dos Santos, and Raimundo da Silva Barreto. 2020. PersonAut: a personas model for people with autism spectrum disorder. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 54, 1--6.
Áurea Hiléia da Silva Melo, Luis Rivero, Jonathas Silva dos Santos, and Raimundo da Silva Barreto. 2020. EmpathyAut: an empathy map for people with autism. In Proceedings of the 19th Brazilian Symposium on Human Factors in Computing Systems (IHC '20). Association for Computing Machinery, New York, NY, USA, Article 45, 1--6.
Publicado
17/10/2022
Como Citar
COSTA, Yuska Paola; GODDE, Anaïs; TRÉMAUD, Maëla; PONTUAL, Taciana; ARCISZEWSKI, Thomas; TARDIF, Carole; GALY, Edith Marie.
A survey on accessibility guidelines for users with autism: a broad understanding of the relevance and completeness. In: SIMPÓSIO BRASILEIRO SOBRE FATORES HUMANOS EM SISTEMAS COMPUTACIONAIS (IHC), 21. , 2022, Diamantina.
Anais [...].
Porto Alegre: Sociedade Brasileira de Computação,
2022
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