Ensuring Data Sovereignty in IoT Systems for Cognitively Impaired Seniors through Delegated Data Management

  • Hércules S. S. José UAb

Resumo


IoT technologies for seniors improve independence and well-being, but managing sensitive health data can be difficult for those with cognitive impairments. The existing PDS architecture lacks a formal delegation mechanism to enable third parties to manage data on behalf of users. Using the DSR approach, the study proposes a PDS-based delegated data management framework with a delegation-aware component that mediates access requests, enforces scoped and time-bounded authority, and records auditable decision trails. The expected contribution is a capacity-aware, sovereignty-aligned mechanism for secure delegation that preserves residual autonomy while reducing risks of misuse and exploitation.
Palavras-chave: IoT, cognitive impairment, data sovereignty, GDPR compliance, Solid protocol, delegated consent, older adults, delegated data management

Referências

Alexandru, A., Ianculescu, M. and Paraschiv, E. A. (2024). Harnessing the Capabilities of IoHT-Based Remote Monitoring Systems for Decision Making in Elderly Healthcare. In: Balas, V. E.; Dzemyda, G.; Belciug, S.; Kacprzyk, J.[Eds.]. . Decision Making and Decision Support in the Information Era: Dedicated to Academician Florin Filip. Cham: Springer Nature Switzerland. p. 147–184.

Chen, H., Zhou, T. and Wu, B. (6 oct 2024). Ubi-Care: An Elderly Life Support Healthcare Framework Based on Ubiquitous Personal Online Data Stores. In 2024 IEEE International Conference on Systems, Man, and Cybernetics (SMC). . IEEE. [link], [accessed on Jan 26].

Čučko, Š. and Turkanović, M. (2025). A Novel Model for Authority and Access Delegation Utilizing Self-Sovereign Identity and Verifiable Credentials. IEEE Access, v. 13, p. 115102–115134.

Ghayvat, H., Sharma, M., Gope, P. and Sharma, P. K. (aug 2022). SHARIF: Solid Pod-Based Secured Healthcare Information Storage and Exchange Solution in Internet of Things. IEEE Transactions on Industrial Informatics, v. 18, n. 8, p. 5609–5618.

Kelly, J. T., Campbell, K. L., Gong, E. and Scuffham, P. (10 nov 2020). The Internet of Things: Impact and Implications for Health Care Delivery. Journal of Medical Internet Research, v. 22, n. 11, p. e20135.

Kumar, M., Kumar, A., Verma, S., et al. (jan 2023). Healthcare Internet of Things (HIoT): Current Trends, Future Prospects, Applications, Challenges, and Security Issues. Electronics, v. 12, n. 9, p. 2050.

Matayong, S., Jetwanna, K. W., Choksuchat, C., et al. (1 mar 2025). IoT-based systems and applications for elderly healthcare: a systematic review. Universal Access in the Information Society, v. 24, n. 1, p. 99–125.

Pinto, G. P., Donta, P. K., Dustdar, S. and Prazeres, C. (jan 2024). A Systematic Review on Privacy-Aware IoT Personal Data Stores. Sensors, v. 24, n. 7, p. 2197.

Pinto, G. P. and Prazeres, C. (jun 2025). Data Privacy in the Internet of Things: A Perspective of Personal Data Store-Based Approaches. Journal of Cybersecurity and Privacy, v. 5, n. 2, p. 25.

Pinto, G. P., Sousa, N. R., Da Silva, C. N., et al. (1 nov 2025). Enhancing IoT data privacy: AI-assisted consent mechanism in a PDS-based solution. Internet of Things, v. 34, p. 101807.

Saka, S. and Das, S. (25 apr 2025). “Watch My Health, Not My Data”: Understanding Perceptions, Barriers, Emotional Impact, & Coping Strategies Pertaining to IoT Privacy and Security in Health Monitoring for Older Adults. In Proceedings of the 2025 CHI Conference on Human Factors in Computing Systems. , CHI ’25. Association for Computing Machinery. [link], [accessed on Jan 30].

Salvi, S., Garg, L. and Gurupur, V. (22 aug 2025). Stage-Wise IoT Solutions for Alzheimer’s Disease: A Systematic Review of Detection, Monitoring, and Assistive Technologies. Sensors, v. 25, n. 17.

Sambra, A. V., Mansour, E., Hawke, S., et al. (2016). Solid: a platform for decentralized social applications based on linked data. MIT CSAIL & Qatar Computing Research Institute, Tech. Rep., v. 2016.

Schmid, S., Schraudner, D. and Harth, A. (2024). The Rights Delegation Proxy: An Approach for Delegations in the Solid Dataspace.

Sheikhtaheri, A. and Sabermahani, F. (2022). Applications and Outcomes of Internet of Things for Patients with Alzheimer’s Disease/Dementia: A Scoping Review. BioMed Research International, v. 2022, n. 1, p. 6274185.

Singh, B., Lopez, D. and Ramadan, R. (1 sep 2023). Internet of things in Healthcare: a conventional literature review. Health and Technology, v. 13, n. 5, p. 699–719.

Testa, D., Iborra, V., Dutech, M., et al. (10 sep 2025). Impact of a Home-Based Remote Patient Monitoring System on Hospitalizations and Emergency Department Visits of Older Adults With Polypathology: Multicenter Retrospective Observational Study. Journal of Medical Internet Research, v. 27, n. 1, p. e64989.
Publicado
11/05/2026
JOSÉ, Hércules S. S.. Ensuring Data Sovereignty in IoT Systems for Cognitively Impaired Seniors through Delegated Data Management. In: CONGRESSO IBERO-AMERICANO EM ENGENHARIA DE SOFTWARE (CIBSE), 29. , 2026, Recife/PE. Anais [...]. Porto Alegre: Sociedade Brasileira de Computação, 2026 . p. 324-331.