A practical approach to exploit public data available on the Internet to study healthcare issues
Resumo
A abundância de dados e serviços disponíveis na Internet permite novos modos na realização de estudos sociais. Entretanto, usar esses recursos ainda é desafiador, levantando questões como onde encontrar boas fontes de dados e como utilizá-los em estudos sobre questões relevantes de saúde. Este artigo apresenta uma abordagem prática para realizar esses estudos. Essa abordagem tem três etapas, em que a primeira provê uma visão geral das informações disponíveis na Web, a segunda vai em direção ao universo das comunidades online, e a última aprofunda na análise de uma comunidade online buscando respostas para questões de pesquisa. Como um exemplo de aplicação, são apresentados resultados de um estudo sobre o uso de drogas no Brasil.Referências
Banks, A. (2011). The Brazilian Online Audience. Feb, 2011. URL: [link]. Accessed: 2012-04-01.
Bender, J. L., Jimenez-Marroquin, M.-C., and Jadad, A. R. (2011). Seeking support on facebook: A content analysis of breast cancer groups. Journal of Medical Internet Research, 13(1):e16.
Berger, M., Wagner, T. H., and Baker, L. C. (2005). Internet use and stigmatized illness. Social Science & Medicine, 61(8):1821–1827.
Boyd, D. M. and Ellison, N. B. (2007). Social network sites: Definition, history, and scholarship. Journal of Computer-Mediated Communication, 13(1):article 11.
Carneiro, H. A. and Mylonakis, E. (2009). Google trends: A web-based tool for real-time surveillance of disease outbreaks. Clinical Infectious Diseases, 49(10):1557–1564.
Carvalho, D., Fuks, H., and Lucena, C. (2012). Community Association Map: Processing inter-community relationships. In Proceedings of the 8th International Conference on Web Information Systems and Technologies (WEBIST), pages 665–670. Springer.
CGI (2011). Survey on the use of information and communication technologies in Brazil: ICT Households and ICT Enterprises 2010. Comitê Gestor da Internet no Brasil.
Cohen, R. A. and Stussman, B. (2010). Health information technology use among men and women aged 18-64: Early release of estimates from the National Health Interview Survey, January-June 2009. Health E-Stats. National Center for Health Statistics.
Eysenbach, G. (2009). Infodemiology and infoveillance: Framework for an emerging set of public health informatics methods to analyze search, communication and publication behavior on the internet. Journal of Medical Internet Research, 11(1):e11.
Gold, J., Pedrana, A. E., Sacks-Davis, R., Hellard, M. E., Chang, S., Howard, S., Keogh, L., and andMark A Stoove1, J. S. H. (2011). A systematic examination of the use of online social networking sites for sexual health promotion. BMC Public Health, 11(1):583.
Gomide, J., Veloso, A., Meira, W., Almeida, V., Benevenuto, F., Ferraz, F., and Teixeira, M. (2011). Dengue surveillance based on a computational model of spatio-temporal locality of twitter. In Proceedings of the ACM WebSci’11, pages 1–8. ACM.
Greene, J. A., Choudhry, N. K., Kilabuk, E., and Shrank, W. H. (2011). Online social networking by patients with diabetes: a qualitative evaluation of communication with facebook. Journal of General Internal Medicine, 26(3):287–292.
IBGE (2011). Sinopse do Censo Demográfico 2010. Instituto Brasileiro de Geografia e Estatística.
Kozinets, R. V. (2009). Netnography: Doing Ethnographic Research Online. Sage Publications Ltd.
Lasker, J. N., Sogolow, E. D., and Sharim, R. R. (2005). The role of an online community for people with a rare disease: Content analysis of messages posted on a primary biliary cirrhosis mailinglist. Journal of Medical Internet Research, 7(1):e10.
Lazer, D., Pentland, A., Adamic, L., Aral, S., Barabási, A.-L., Brewer, D., Christakis, N., Contractor, N., Fowler, J., Gutmann, M., Jebara, T., King, G., Macy, M., Roy, D., and Van Alstyne, M. (2009). Computational Social Science. Science, 323(5915):721–723.
Lefevre, F. and Lefevre, A. M. C. (2006). The collective subject that speaks. Interface Comunicação, Saúde, Educação, 10(20):517–524.
Madeira, W. (2011). Transformar é preciso: transformações na relação de poder estabelecida entre médico e paciente (um estudo em comunidades virtuais). PhD thesis, Faculdade de Saúde Pública, Universidade de São Paulo, BR.
Preece, J. and Maloney-Krichmar, D. (2005). Online communities: Design, theory, and practice. Journal of Computer-Mediated Communication, 10(4):article 1.
Telegraph, T. (2010). Archived by WebCite R© at [link].
Whitehead, L. C. (2007). Methodological and ethical issues in internet-mediated research in the field of health: an integrated review of the literature. Social Science & Medicine, 57(4):782–791.
Bender, J. L., Jimenez-Marroquin, M.-C., and Jadad, A. R. (2011). Seeking support on facebook: A content analysis of breast cancer groups. Journal of Medical Internet Research, 13(1):e16.
Berger, M., Wagner, T. H., and Baker, L. C. (2005). Internet use and stigmatized illness. Social Science & Medicine, 61(8):1821–1827.
Boyd, D. M. and Ellison, N. B. (2007). Social network sites: Definition, history, and scholarship. Journal of Computer-Mediated Communication, 13(1):article 11.
Carneiro, H. A. and Mylonakis, E. (2009). Google trends: A web-based tool for real-time surveillance of disease outbreaks. Clinical Infectious Diseases, 49(10):1557–1564.
Carvalho, D., Fuks, H., and Lucena, C. (2012). Community Association Map: Processing inter-community relationships. In Proceedings of the 8th International Conference on Web Information Systems and Technologies (WEBIST), pages 665–670. Springer.
CGI (2011). Survey on the use of information and communication technologies in Brazil: ICT Households and ICT Enterprises 2010. Comitê Gestor da Internet no Brasil.
Cohen, R. A. and Stussman, B. (2010). Health information technology use among men and women aged 18-64: Early release of estimates from the National Health Interview Survey, January-June 2009. Health E-Stats. National Center for Health Statistics.
Eysenbach, G. (2009). Infodemiology and infoveillance: Framework for an emerging set of public health informatics methods to analyze search, communication and publication behavior on the internet. Journal of Medical Internet Research, 11(1):e11.
Gold, J., Pedrana, A. E., Sacks-Davis, R., Hellard, M. E., Chang, S., Howard, S., Keogh, L., and andMark A Stoove1, J. S. H. (2011). A systematic examination of the use of online social networking sites for sexual health promotion. BMC Public Health, 11(1):583.
Gomide, J., Veloso, A., Meira, W., Almeida, V., Benevenuto, F., Ferraz, F., and Teixeira, M. (2011). Dengue surveillance based on a computational model of spatio-temporal locality of twitter. In Proceedings of the ACM WebSci’11, pages 1–8. ACM.
Greene, J. A., Choudhry, N. K., Kilabuk, E., and Shrank, W. H. (2011). Online social networking by patients with diabetes: a qualitative evaluation of communication with facebook. Journal of General Internal Medicine, 26(3):287–292.
IBGE (2011). Sinopse do Censo Demográfico 2010. Instituto Brasileiro de Geografia e Estatística.
Kozinets, R. V. (2009). Netnography: Doing Ethnographic Research Online. Sage Publications Ltd.
Lasker, J. N., Sogolow, E. D., and Sharim, R. R. (2005). The role of an online community for people with a rare disease: Content analysis of messages posted on a primary biliary cirrhosis mailinglist. Journal of Medical Internet Research, 7(1):e10.
Lazer, D., Pentland, A., Adamic, L., Aral, S., Barabási, A.-L., Brewer, D., Christakis, N., Contractor, N., Fowler, J., Gutmann, M., Jebara, T., King, G., Macy, M., Roy, D., and Van Alstyne, M. (2009). Computational Social Science. Science, 323(5915):721–723.
Lefevre, F. and Lefevre, A. M. C. (2006). The collective subject that speaks. Interface Comunicação, Saúde, Educação, 10(20):517–524.
Madeira, W. (2011). Transformar é preciso: transformações na relação de poder estabelecida entre médico e paciente (um estudo em comunidades virtuais). PhD thesis, Faculdade de Saúde Pública, Universidade de São Paulo, BR.
Preece, J. and Maloney-Krichmar, D. (2005). Online communities: Design, theory, and practice. Journal of Computer-Mediated Communication, 10(4):article 1.
Telegraph, T. (2010). Archived by WebCite R© at [link].
Whitehead, L. C. (2007). Methodological and ethical issues in internet-mediated research in the field of health: an integrated review of the literature. Social Science & Medicine, 57(4):782–791.
Publicado
16/07/2012
Como Citar
CARVALHO, Dárlinton; MADEIRA, Wilma; OKAMURA, Mirna; LUCENA, Carlos; ZANETTA, Sérgio.
A practical approach to exploit public data available on the Internet to study healthcare issues. In: SIMPÓSIO BRASILEIRO DE COMPUTAÇÃO APLICADA À SAÚDE (SBCAS), 12. , 2012, Curitiba/PR.
Anais [...].
Porto Alegre: Sociedade Brasileira de Computação,
2012
.
p. 1-10.
ISSN 2763-8952.
